Understanding SUDC Conference 2017

Understanding Sudden Unexplained Death in Childhood Conference

Your Role in Raising Awareness, Supporting Families, and Applying Best Practices

The Understanding Sudden Unexplained Death in Childhood Conference was held in New York City, N.Y., in May of 2017. The conference was the first multidisciplinary medical conference on SUDC which featured critical research updates and best practices from the fields of epidemiology, pathology, genetics, cardiology, neurology and palliative care. Over 225 attendees joined from 35 U.S. states and five countries.

The conferences was jointly presented by NYU Post-Graduate Medical School and the SUDC Foundation and welcomed cross-discipline medical professionals, including physicians, pathologists, medical examiners, nurses, basic science researchers, public health officials, investigators, other clinicians and affected family members.

The SUDC Foundation thanks all who made this conference possible, especially our sponsors, speakers and Austen Deery for capturing the events in his documentary, Love Beyond Reason.

Conference Resources:

Love Beyond Reason: An 8-minute documentary, directed by Austen Deery, depicting the challenges the medical community faces as it tries to understand this classification of death and the heartache of parents and families who have experienced the sudden loss of a thriving child with no medical cause or explanation.

Endorsed by

National Association of Medical Examiners (NAME)

8:00 AM to 12 PM:	Registration
	Welcome
	Who is the SUDC Child? - Laura Crandall, MA, Research Scientist, Department of Neurology, NYU Langone Medical Center.
	Epidemiology/Surveillance of SUDC - Margaret Warner, Ph.D., U.S. Centers for Disease Control and Prevention, National Center for Health Statistics.
	Medicolegal Death Investigation in U.S. Today - Keith Pinckard, MD, PhD, Chief Medical Examiner, Travis County Medical Examiner's Office, Austin, TX.
	The Forensic Pathologist's Investigation of Sudden Unexpected Child Death - Kristen Landi, MD, Medical Examiner, NYC Office of the Chief Medical Examiner
	Febrile Seizures and SUDC - Orrin Devinsky, MD, Director of NYU Comprehensive Epilepsy Center, NYU Langone Medical Center.
	Break
	Neuropathology of SUDC - Arline Faustin, MD, Research Scientist, Department of Neurology and Neuropathology, NYU Langone Medical Center and Declan McGuone MB, BCh FRCPath(neuro), Medical Examiner, NYC Office of Chief Medical Examiner
	Neuroimaging in SUDC - Timothy Shepherd, MD, PhD, Director of Brain Mapping, Assistant Professor of Neuroradiology, Department of Radiology, NYU Langone Medical Center.
	Studying the Genetics of Sudden Death - David Goldstein, PhD, Director, Institute for Genomic Medicine, John E. Borne Professor and Professor of Genetics and Development, Columbia University Medical Center, New York, NY.
	Q&A
12:10 PM to 1:00 PM:	Lunch provided if conference registration is received by April 23, 2017
1:00 PM to 3:00 PM:	Cardiac Causes of Sudden Unexpected Death In the Young - Joseph Maleszewski, MD, Associate Professor of Laboratory Medicine and Pathology, Mayo Clinic, Rochester, MN.
	State of the Molecular Autopsy for Sudden Death in the Young: Achilles Heels That Threaten the Molecular Autopsy– Michael Ackerman, M.D., Ph.D., FACC, Windland Smith Rice Genomics Research Professor, Professor of Medicine, Pediatrics, and Pharmacology, Mayo Clinic; Director, Long QT Syndrome/Genetic Heart Rhythm Clinic and Mayo Clinic Windland Smith Rice Sudden Death Genomics Laboratory, Rochester, MN.
	Best Practices for Communicating with Families at the ED and During the Death Investigation - Joanne Kuntz, MD, Quality Leader for Palliative, Emory University- Midtown, Associate Professor Emory School of Medicine, Atlanta, GA.
	Multidisciplinary Clinical Care of the SUDC Family: “My child died, can you keep my family safe?” A multispecialty panel discussion around the role of the clinician during the MDI and beyond. Moderated by Frank Cecchin, MD, Andrall E. Pearson Professor of Pediatric Cardiology, NYU Langone Medical Center.
3:00 PM - 3:15 PM: Conclusion of Main Conference	Where do we go from here? - Orrin Devinsky, MD

3:15 PM to 4:30 PM:	Professional Tract: SUDCRRC Investigator Retreat (SUDCRRC Investigators Only) .
3:15 PM to 4:30 PM:	Family Break Out: Family Debriefing (Families affected by SUDC)
4:45 PM to 5:45 PM:	Receiptionwith Food/Drink for SUDCRRC Investigators and SUDC Families.